Sunday, 18 October 2015
My thoughts on Autism
These are my thoughts about what
I know, so far, about autism. And I mean
so far, as research will indeed lead us to know more about the genetics and morphology
of what we call Autism, therefore changing practices and beliefs.
It seems that the term Autistic
Spectrum Disorder is not an accurate one, when describing the neurological
connexions that seem to characterise people with Autism. Baron-Cohen refers to a condition to describe
Autism rather than a disorder. As he, so
accurately explained, a disorder means that something is broken. In the case of Autism, the neurological
connexions and consequent behaviours may be impaired, differently connected and
wired, but these are certainly not broken as many studies come to show. People with Autism may be wired differently
(in terms of neural interconnections) but these are not broken. And so it seems fair to speak about a
condition rather than a disorder.
Whichever the case, it should be people with Autism who chose the term to
describe their condition.
When it comes to the triad of
impairments (problems with social and emotional understanding, problems
understanding and the use of communication and language, problems with
flexibility of thought and imagination), used to diagnose Autism, the triad is
illustrated by a triangle. But it seems
that the picture should be a square rather than a triad, as more people with
Autism than not, present with an imbalance in their sensory domain or
experience problems with their sensory perception and consequent responses.
In regards to curing Autism, it
is not only a lie but an offence to people who have Autism. Autism is part of the person and you cannot
get rid of.
In terms of therapies to help
alleviate the negative or most contra productive symptoms of Autism there is a
huge variety of approaches. I would
suggest to be wary of those therapies which may offer a cure. Also we cannot believe those backed up by
research, as it can be biased and thus non-accurate. There is an abundant body of therapeutic
approaches available for parents and professionals. Some of them offer to cure, some are backed
up by huge bulk of research showing how beneficial they are, others seems to be
too clever and complex and therefore artificial to us humans, who after all,
are nothing but social animals and have been for thousands of years, since man
is man. Other approaches seem to be fit
for and work well in the training of animals.
As humans we need a naturalistic human approach if we are to help
someone.
There is some great work out
there too which I believe should be recognised and acknowledged. The work of people who try to put together a
coherent and comprehensive approach to help with socialisation and
communication as well as meeting other needs (medical or sensory wise) seems to
be the way forward. A natural approach
which meets a person’s needs, for who s/he is regardless of the condition a
person may present with, seems to make sense.
The support needed for people
with Autism variates as much as we all differ from each other and therefore it
cannot be a unique model to fit all.
What it seems to work is an approach which meets the person needs and
engages in an emotional level in order to reach and being able to help that
person. This is a vital premise, a must,
if we really want to make a difference in a person’s life. The support must be throughout all aspects of
a person’s life, from the physical to the emotional through the social and
communicative. The support must be therefore emotional, transitional and
social-communicative.
We must remember that it is an
internal need that makes us function, that makes us be who we are and do
what we do, and that any support offered must be internalised, meeting that
internal need, if it is to succeed.
We are social animals and as such
we need touch and care, and to be able to communicate efficiently in order to
make our immediate environment as comfortable, or bearable for one as
possible. That is the true sign of
intelligence, to make the most of what we have to meet our needs, rather than
an IQ test, which measures a person’s capacity for logic-academic reasoning.
Thus, we need to support those
areas which seem impaired or that function differently and are not beneficial
to a person. In the case of Autism, the
social-communicative areas may not lead to a successful management of the
environment for a person and therefore any approach which helps, must have a
strong social-communicative component, alongside emotional, transitional and
physical support.
If we need help communicating we
need to work on communication no end. But communication is linked to the
emotional as well as the physical side of a person, for obvious reasons, and
these areas should all be supported together to be able to make a difference in
a person’s life.
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